Monday, May 23, 2011

For Those of You Struggling with Asthma

It's been a long time since I last posted, but I wanted to share something I recently learned in the hope that it will help someone else.

I've had a long history with asthma, first diagnosed when I was a toddler and still living in Florida. When we moved north, I was asymptomatic for years. Practically cured we thought. It wasn't until about age eleven, that the dreaded asthma word started to come up again, this time in relation to allergies I had just spontaneously developed. Looking back, I don't think it was really asthma, just allergies--mostly to animal dander, pollens, weeds, and molds. I was put on asthma medication as a preventative measure, but really, I think allergy medication would have worked all on its own.

Asthma wasn't an issue for me, that is until just a few years ago. My son was about four or five at the time. I remember that I had gotten a cold, and that that cold had turned into bronchitis. Not being the sort to run off to the doctor for things I think I can ride out at home, I waited. I waited a long time, but I never got better. After a few weeks of this, I finally succumbed, and went to the doctor. I was diagnosed with bronchitis, and sent home. After the antibiotic treatment, I felt better. But ever since that episode, I found that I was getting sick at the drop of a hat. After several relapses I was re-diagnosed with asthma--specifically asthmatic bronchitis. For a while there, as I switched doctors from time to time, always searching for someone who could help me, I received conflicting diagnoses. One doctor told me that I couldn't possibly have asthma because I had a productive cough. His diagnosis? Anxiety. He came to this conclusion when I didn't improve after treatment.

Again, I found myself getting "bronchitis" or something like it, several times per year. I was re-re-diagnosed with asthma, and every time I was symptomatic, my pulmonologist would prescribe the same medication--Azithromycin (Z-pack) and Prednisone. Every time, I felt an immediate relief of my symptoms. I assumed it was the Prednisone.

This past March, I got sick again, and delayed going to the doctor. When I woke up on a Saturday morning, about 10 days after I had first gotten sick, I was coughing up blood, and figured I'd better get seen. My doctor didn't have hours on Saturdays, so I went to one of those Urgent Care clinics. Again, I was diagnosed with bronchitis, which I was told had exacerbated my asthma. I also had an eye and throat infection. Yep, I was a mess because I waited too long to seek treatment. Again, I was given prescriptions for a Z-pack and Prednisone, as well as a few other medications for the coughing and eye infection.

On May 13th, just a little over a week ago, I got sick yet again. By Monday, I decided that it was starting to get out of control. I liked the Urgent Care clinic so much, that I decided to go back there again. I saw a different doctor. She told me that I didn't have bronchitis. I thought I did, as that's what I'm always diagnosed with whenever I go (sometimes up to 6 times per year). She said I was having an asthma exacerbation...i.e., an asthma attack. She checked my peak flow, gave me a nebulizer treatment, and I improved slightly, but not enough. Next I got a steroid shot, and left there with a 15 day prescription for Prednisone, and a prescription for Singulair (which I had taken before, without much improvement). I was to take these in addition to my Advair and Ventolin rescue (which I had been using up to 4x/day). The doctor felt that I didn't need antibiotics this time, as technically, it wasn't an infection, just an asthma flare-up.

I didn't notice any improvement after a few days. As a matter of fact, by day six of my course of Prednisone, I was still finding it difficult to draw breath, and the coughing fits kept me awake all night. It struck me that I wasn't improving. The only difference between this last visit to the the doctor and all of my previous visits, was that I had always been prescribed antibiotics along with the Prednisone. I was curious, so I Googled for info on the treatment of asthma with antibiotics, and I found this very informative website. The research page at the site has tons of links from reputable sources finding that there is a bacterial link to many cases of asthma, and that it can be "cured" with an extended course of antibiotics. Considering how quickly I improve with the antibiotics, it made sense to me. I made up my mind to find a doctor who would be receptive to this information.

On Saturday, I spent the day at my Mom's apartment. I still wasn't feeling well, and didn't want to be alone--my husband and the kids were out all day for kung fu and errands. I was still only on the Prednisone and Singulair, in addition to my other asthma medications. I had a very difficult time at my mother's. After my third nebulizer treatment, I was flushed, and I felt like I had tied tourniquets on both of my upper arms. The pressure on my arms was awful, and my veins looked as if they were bulging. I had a lot of pain in my chest. I refused to go to the ER, but I probably should have. Yesterday morning I woke up, coughing up blood again. I went back to the clinic as it was Sunday, and the only place other than the ER that was open. My peak flow was again, not so great. I had another nebulizer treatment, and the doctor wanted to give me another steroid shot. I refused the shot, considering that I was still taking the prednisone (on day 6 of 15). I told her about the research, and she seemed receptive. But she wanted to prescribe a preliminary dose of antibiotics anyway, as she figured that I was putting too much strain on my heart.

Now here I am today. I've had only two doses of the antibiotic (500 mg each), and I'm feeling a noticeable difference. I'm confident that if I follow the extended antibiotic protocol, I may even be cured of asthma. Seriously. I'm feeling very hopeful. When I weigh out the pros and cons of trying the antibiotic treatment (one weekly dose for between 9-15 or more weeks) as opposed to indefinitely using a ton of steroidal drugs to treat my asthma, the choice is clear.

In any case, I just wanted to share this information with all of you. I wish all of you who struggle with this to be well. If you respond to antibiotics during asthma flare-ups, this could help you.

Here are a few other links (in addition to http://www.asthmastory.com hyperlinked above):


Information For Interested Physicians – Dr. David L. Hahn – http://www.asthmastory.com/research/asthmamdinfov13.pdf

Model Demonstrates Infections Cause of Asthma – ScienceDaily May 25, 2010 http://www.sciencedaily.com/releases...0524161240.htm

Asthma Linked to Chronic Chlamydia - http://www.drkaslow.com/html/asthma-_an_infection_.html

Infectious Asthma Research – Dr. David L. Hahn - http://www.dean.org/Foundation/resea...-research.aspx

Asthma Trial in Community Settings - http://clinicaltrials.gov/show/NCT00266851%20

Treatment of Chlamydia Pneumoniae Infection in Adult Asthma: A Before-After Trial - http://clinicaltrials.gov/show/NCT00266851%20
Additional Research w/ Several Links: http://asthmastory.com/theresearch/

UPDATES:

Follow-up posts. (It's been a long journey.) - Here and Here. More to come shortly.

3 comments:

  1. It's interesting that you respond better to the antibiotics. How come that after some improvement, you have again exacerbations? If your case is asthma triggered by a microbe, then the antibiotic is not completing the job. Or you are being "re-infected" each time (which is less likely, unless you love to kiss your dog in the mouth). How long you would be using antibiotics? 6 months? 12 months? I have searched the literature, and although improvement, nobody is claiming complete cure as the web site you mentioned. Maybe he was lucky or else.

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  2. Hello,

    Thank you for your comment. :)

    You are absolutely right that the antibiotic was not completing the job, at least not within the usual length of time that I was taking it. It turns out that I just needed a longer treatment. The Z-packs I was using were only a five-day course. It just wasn't long enough for me. I ended up taking the antibiotics for just over 12 weeks. I took the regular dose for the first five days (250MG), followed by a three day blast (600MG), and then followed through with one weekly dose of 600MG for 12 weeks. Would I say that I'm completely cured? I don't know. BUT, I can tell you that for the first time in several years, I haven't had a significant asthmatic episode, or a bout of bronchitis which would always lead to the asthma exacerbation. I caught two colds, each lasting only three days, with no asthma symptoms. That's unheard of for me! I do want to add that I'm also taking vitamins and supplements to keep my immune system strong, which I'm sure is helping as well.

    Your comment reminded me that I really need to write an update on this. I had to go to another doctor and request the longer term treatment. Of course, this may not work for everyone, and I don't mean to suggest that it will, but it has certainly helped me very much, and I believe that it has greatly improved my quality of life. Of course, taking antibiotics should never be taken lightly, and honestly, opting for this course of treatment was a last resort for me.

    By the way, my last dose of the antibiotic was in September 2011. My asthma is usually at its worse in the fall and the winter, and this was the first time I didn't have any problems during those seasons.

    If you're struggling with asthma, my thoughts and prayers are with you, and I sincerely hope that you find something that helps.

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  3. If you're interested, I did write more about this issue in two other posts. See here: http://oldeschooling.blogspot.com/2011/05/and-so-it-continues.html

    and here:
    http://oldeschooling.blogspot.com/2011/06/light-at-end-of-tunnel-quite-possibly_8574.html

    Again, much luck to you!

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